Tuesday, November 24, 2009

potty humor

It's morning.
School mornings are crazy.
I am juggling all these different things zooming from one thing to the next. Caleb has gone to the bathroom and run out to get dressed without flushing the toilet.
Thinking I am just doing him, but really myself a favor, I reach over and flush the toilet.
It's then that I hear the screaming.
Caleb comes running, horrified into the bathroom.
He looks from the toilet, then to me.
He sinks to his knees crying. "NOOOOOOO!"

"Mom, I didn't do hurry!"

Confusion.

"Caleb" I say, "I have no idea what you are talking about."

Hailey perks up from the kitchen.
"I do." she says.
"Me too" nods Jonas.

"Okay, what's he talking about?"

Hailey says, "He sings a song about hurrying as he flushes the toilet.
Jonas adds disgusted, "And he leans in really close."

"Are you serious?" I ask?

"yes he does it every time..." they say in unison.

I look at Caleb sobbing on the bathroom floor in mourning that he wasn't able to serenade his pee, and I think, "And I was worried about Hailey's future?"

Monday, November 23, 2009

The backstory

Lots of you have asked how we came to the diabetes diagnosis. You ask and I provide. (I am giving like that)

Here is our story:

October:
I notice little things. Hailey drinks a lot, I tell myself. Has she always peed this much? I ask why she is drinking so much and she shrugs and tells me she’s just thirsty. There is a tiny little part of me that whispers Diabetes but it’s not that bad, she doesn’t drink that much. I push it aside. She plays a lot. If I ran around that much I would be thirsty too.

At night, I hear her get up to go to the bathroom several times. Her nightly drink of water becomes 2 and 3. She is just adjusting to the new house and waking herself up, I tell myself as I hear the Diabetes whisper again.

First weeks in November.

Hailey starts getting little tummy aches at night. She wakes up disoriented and uncomfortable. But Hailey has always had a sensitive stomach and she sleepwalks. It must be that.
It becomes a joke around the house how much Hailey drinks and pees. But it’s harmless, I tell myself. She just has a small bladder.
The diabetes whisper is whisper-yelling at me now.

Middle of November.

Hailey is tired. Always tired. She doesn’t go outside to play anymore and if I suggest it, she plays for a few minutes then comes and lies around.
That little whisper isn’t a whisper anymore.
It’s eating at me.
I mention it to Brian. But I follow it with, I am probably just making too much of it.
She is drinking more than ever and she looks dehydrated.
Her tummy hurts.
She says she is too tired to walk to school… around the corner.
Brian looks up symptoms and two things pull up:

Leukemia and diabetes.

I pray for diabetes.

While waiting for my appointment the next day, I monitor Hailey’s drinking. 80 ounces in 3 hours. That’s more than a two liter. She Pees every half hour. Her stomach hurts. Her lips are chapped and her eyes are sunken and red. The whisper is a yelling fact now: something is wrong.

Now I pray its diabetes.
The pediatrician sends us to the lab for blood and urine tests. He puts a rush on the order. They tell us to wait. We wait 3 minutes before we see the lab tech zoom out of the back, telling us nothing other than to follow her.
We can’t keep up with her.
There is only one reason to move so fast.
I know.
The doctor asks me if I know what a normal blood sugar is.
“60?” I say.
“Yes.” he says.
He glances at Hailey and rather than speaks, shows me on paper.
“Do you see Hailey’s blood sugar?”
I read > 800.
I know.
I knew.
I just didn’t want it.
I say, “There is no other reason for that number other than diabetes?”
He says no.
Hailey is crying quietly now. She knows diabetics take shots.
The doctor looks at me, at my little kids and says
“Do you have someone who could watch your other children? I would suggest you go to Primary Children’s emergency room. I would also suggest you don’t wait or…”
He looks at Hailey and stops.
I nod.
“I know,” I say, “the worst could happen.”
“Yes,” he says, “the worst.”
Hailey is crying openly now, asking me why we have to go to another hospital. Why can’t I just give her some medicine? Begging, pleading for no shots.
I tell her Primary’s is the best hospital. That it has a playroom and they give you a stuffed animal.

At Primary’s we learn Hailey’s number has blood sugar even higher and we are thankful we got her there when we did. She is miserable and cries that whole first day. Her veins are too little; she is too dehydrated to get blood drawn. They try over and over and I let them and hold Hailey’s hand. She is poked and injected and fed fluids through IV’s and she just cries and accepts it.
At one point, she glares at me and says “You said this hospital was a nice place. I hate it.”

In that moment I hate it too.

But the next day, she wakes hydrated and filled with insulin and is allowed to eat. They let her eat whatever she wants.
She chooses pancakes and chocolate milk.
They bring her toys from the playroom.
They give her a wooden heart to paint and glitter up.
They let her watch Robin Hood.

She tells me this is the nicest hospital with the nicest nurses.

In that moment I think so too.

Sunday, November 22, 2009

home again, home again, jiggety jig...

We are home.
Yesterday I would have written that like this:
WE ARE GOING HOME!!
But when I got home I realized that at the hospital, my only focus was Hailey and Diabetes.
But at home I have three other children that haven't seen me in days.
I have a house, that hasn't seen it's keeper in days.
A fridge that was empty and
laundry that was overflowing.

So last night was hard.

Hailey decided she was done with being understanding about all the poking and injecting and decided to start refusing. Porter needed rice cereal and started screaming. Caleb was crying/whining about something (no nap), and Jonas was desperately trying to tell me all about something he read in his book while we were gone.

OVERLOAD.

So my brother came with dinner (bless him), Caleb was quickly pacified by the diet sodas he brought along with dinner, Jonas started telling Brian all about whatever it was while he fed Porter, I had a heart to heart with Hailey which resulted in a hug and a shot in the tummy, and we set off to the store to fill the fridge.
Hailey reminded me we must bring her meter everywhere we go now, so we ran back in and grabbed it.
We shopped for "free" items like sugar free jello cups, string cheeses, and sugar free popcicles. (no carbs is the game we play now.)
We ran into many people and had to stop and talk.
Finally we loaded up and pulled out of the store when I realized the meter wasn't with us.

Really?

Day one and I already screwed up.

We searched the store and carts for an hour with no luck. Hailey was in a complete panic. She needed her night snack and shot so we left our name with the front desk and went home.

Dinner was still sitting out.

SIGH....

So I got her checked, shot and fed. Cleaned up, threw in some laundry, and promptly crashed. Brian handled the other kids and monitored Hailey in the night for me.
I woke up this morning and Hailey was back to being Super Hailey. She said having diabetes is cool because she got presents and special snacks.
And the shots and pokes no longer hurt.
The kitchen was still clean.
Laundry semi done.
And there was a message on the machine that the store found Hailey's meter.

So I think we are on an upswing.

Saturday, November 21, 2009

thoughts




key tones, hyperglycemia hypoglycemia, endocrinology, humilog, lantis, glucagon correction injections, carb injections....
This week my brain desperately wanted to explode.

But my heart did instead.

It is too full of gratitude, love, pride, and joy in this little girl.




I don't know if I can think of a stronger little girl.
I don't know if I could at 30, handle all the changes she has this week as well as she is.



In the hospital I lay awake every night thinking.
I think lots.
I think about how uncomfortable these "beds" are, but glad I can stay with Hailey.
I think about how loud and beepy hospitals are but glad I can be in the best of the best.
I think about how hard it is to have this disease but how blessed we are to have a name and expectations and a way to manage it.
I think about how perfect and fitting this year's family theme of courage is now.

But
I never wonder why because I already know...
Because she is strong.
Because she can be a light.
Because she can do anything.

And because I needed to spice my life up a little more.

and spicy it will be.

Friday, November 20, 2009

Thankful

I am thankful for my children who are my life.
I am thankful for my daughter who has amazed me with her strength the past few days.
I am thankful for the persistent nagging of what some people call a mother's intuition, but what I call the spirit.
I am thankful for a doctor who covers all the bases.
I am thankful for a husband who tells me we can make it through anything.

I am thankful we usually do.

We will be enjoying life at Primary Childrens for then next few days as we try to understand Hailey's newly diagnosed Diabetes. We had a scary and hard past few days but she has shone through it. She is amazing and wonderful and I am so proud to be her mom.

The girl is a trooper.

Monday, November 9, 2009

Desperate times call for desperate measures

Sometimes in life you want things. Things you can’t have.

And when that happens you just have to face it and make due.

Little brothers were not on Hailey’s list of wants, but she has courageously adapted.


And now Hailey has reason to smile…


Because little brothers aren’t the end of the world.


Little brothers can still be eager students.


They can be willing participants.


They can be adoring fans.



And they can give the best hugs.


Life can still be good with those little boys around.


smellier perhaps, but still good.

Thursday, November 5, 2009

[insert giant exhausted sigh here]

Today was a long day.


First there was the 1.5 hours of sleep.
Total.
There was the sick and crying baby.
There was a sick mom.
There was a three year old. (need I say more?)
There was getting the kids off 30 minutes early to school. (no small feat).
There was forgetting to make the lunches.
There was a three year old.
There was a flood.
There was thankfully a skilled husband to jump on the cleaning and drying of said flood.
SIDE NOTE: little do you know that the drying system used by mitigation experts is also an in house sauna! seriously 99 degrees in my home. No joke. And also this sauna just so happens to be louder than a Kiss concert! So fun!
There was more sickness.
There was a three year old.
There were no naps.
There were children on sugar highs.

So at 7:50 tonight, I told the husband I was off to the store for medicine and Dr. Pepper.

And that I was taking the LONG way home.